Monday, July 31, 2006

Last Sunday, I called my mom. She had told me to call her before I left town to elope with Guy. She had received her second chemo treatment that Friday, so I knew she wasn't planning on going anywhere.

So why did I get the answering machine?

I left a message, thinking that maybe they were napping. No one called back. First thing on Monday morning, when it is late enough Pacific time to call, I dial.

Answering machine again.

I turn to Guy and say, "Mom is in the hospital. Something has gone wrong, and she is in the hospital." Another man would have told me not to worry and that there was no way to know that. Guy said, "You are probably right. There isn't anything you can do about it now, but if we need to go to CA instead of on our honeymoon, we'll work it out." God, I love that man.

My brother has not heard from them either. I wake him up I think, and he tells me to go ahead and get married and not worry about it. He will find out what is going on and let me know.

Don't worry about it.

That is completely ridiculous I think. I'm on my way to Montreat, North Carolina to marry the man of my dreams in the most beautiful town in the world, by my favorite minister (second to Mom), by a, I kid you not, babbling brook. It could not have been more perfect, and yet I'm supposed to not worry about it.

There is something that my parents are quite confused about, and it is that even though I worry about them, I am still able to function in my everyday life. Even though eloping with no family present was not at all how I wanted to get married, I made do, and pretty damn well, thank you. Yes, I want them safe, healthy, here, and happy. In the event that I can't have all that right now, I'll take what happiness I can get.

The happiness I have now is my new family. Aside from being the new bride of the most wonderful man in the world, I'm also a new stepmother. Lovely is now officially my stepdaughter. I tried to work the dogs into the equation as well, but nobody is buying the whole stepdog thing.

There is always some amount of happiness. And I truly believe, from the course of my life in the past few years that there will always be that amount of sadness too. You can't choose your circumstances, but you can choose how you react to them I think.

I am scared to death for my mother. She is still in the hospital. Daddy is staying at the house by himself. I'm happy about neither, and can control neither at the same time. I could though, go ahead and take care of marrying the man of my dreams. A long term investment if you will.

Thursday, July 20, 2006

My mother and I are both making new life long commitments. Mine is to the love of my life. Hers is to chemotherapy. I hope her new commitment is not going to replace the one she made to my father.

When she told me that she would be on chemotherapy "indefinitely," I thought to myself, "You mean until you die." I don't know why I have to be so morbid some days. It is hard to find hope in this situation though. She will be on chemotherapy until she dies. Not until her cancer goes away, but until it kills her.

I see this as the opportunity for her to drag her feet on moving again. Even though she told me last week that she was going to submit her resignation to the church, she has not, and has no date in mind for doing it. There is this issue of the other pastor needing knee surgery.

I'm sorry. Did she say knee surgery?

Can I just state for the record that I honestly don't care one bit about the overweight senior pastor's knees? Why is that my family is affected by the fact that he is an idiot and has waited until it is a dire situation for him to have knee surgery? Did they all forget that my mother has cancer and my father can't remember what day it is or tie his own shoes? Buy the fat guy a scooter and get on with it.

It is so past time for her to have secured help for my father. When she and I talk now, it is all about her, her treatment, her job, and the decisions that weigh her down. Can I really accuse my own mother of being selfish when she is trying to face terminal cancer? Maybe I shouldn't, but I do. I think she is being extremely selfish by not having resigned yet and especially for continuing to leave him at home unsupervised.

Neither of them have much longer in the grand scheme of things. As I get ready to commit myself to the man I love and respect, I can't help but feel slightly bitter towards her. I would drop anything and everything to take care of him. At this moment in time, she has forgotten her commitment to my father. He needs her. He needs her to help him and to be with him. He needs her to quit working and move him closer to his family. He doesn't need her to talk about it, plan it, re-plan it, or even think much about it at this point. He just needs her to do it.

Thursday, July 13, 2006

My mother will start again tomorrow. Chemo. 8:00 AM Pacific time.

She will be on a 3 week cycle. Week one, she will have two drugs, taxotere and gemzar. Week two, she will just have the gemzar. Week three, she gets to recover some.

And then she will start again.

Neither of these drugs list ovarian cancer on their website as something they treat. Both state that they can be used for metastatic breast cancer. I don't understand that, but I guess that's alright.

There will be no surgery. She was given the false hope of actual tumors that could be removed with surgery. That turns out to not be true. She thinks I've given up on her just because I never believed the surgery option. That is also not true.

My daddy is supposed to have a cat scan on Friday as well. I don't know how they will arrange transportation for both of them, but they have not asked me to come.

Momma insists that there is something else wrong with my father besides Parkinson's. I disagree. His weight has dropped to 127 pounds. He is 6'1". I can barely understand him on the phone anymore because he does not have adequate control of his facial muscles. She has disregarded the diagnosis of Parkinson's with Lewy Body disorder, so I'm not sure of what else she is looking for. It's quite enough.

I don't know which disease is more cruel. If I had to choose, I would say that it's the Parkinson's. Cancer comes and goes until one day, you know it is going to kill you. There are means to fight it and ways to stave it off. It will most likely kill you one day, but there is at least "the good fight." Parkinson's has eaten way tiny pieces of my daddy until there is nothing left but this shell of a man who used to be my foundation. There is no fight. There are drugs that "slow the progression." Unfortunately, if you are diagnosed so late like I believe Daddy was, there is no slowing things down.

And once again, I am left sitting here wondering, "Which one is going to go first?"

I pray that it is Daddy.

Wednesday, July 12, 2006

Start again tomorrow. This was something that my grandfather always said to me. He used to be the one I would call when I had a bad day. By the time I was done unloading my horrid tales, we would both be laughing because really, they were never that bad. I miss him.

I'm starting over. A week from Monday, I will marry the man of my dreams. It has taken time, pain, destruction, and rebuilding to get there, but we have almost made it.

In Montreat, Presbyterians fill the town. Not to mention, it is the most beautiful place on earth. It's the perfect place for a wedding. Ironically enough, the minister who will marry us has already done this for me once. I suppose you have to have a strange sense of humor, but it really is funny. I'm finally going to be married in the mountains by a stream and get to wear my Birkenstocks doing it. Life is good sometimes.

Start again tomorrow. And the next day. And the next.

I'm going to keep on trying. There is no reason why we shouldn't make the best of the lives we've been given.

Monday, June 26, 2006

There are three souls in my life who have been constant comfort the past few years.

There is my 10 year old American Eskimo mix who I took in as a puppy while I was still in college. She is the smartest dog I know, with a large vocabulary, both human and canine.

There is also my 4 year old English Setter. She and Lovely are the best of friends. They sleep together each night, and she has been a real therapy dog for Lovely's transition into living with her parents separately.

Then there is Tippy Tail, a 3-5 year old Irish Red & White Setter. I never did know how old he was. Tippy (not his real name, he would have you know), got sick I think sometime in the last 6 weeks. There was not a moment that I can put my finger on, but looking back, there are so many signs that connect.

Last Thursday night, Tippy Tail lost it.

There has been a problem with fence jumping for awhile now. Not just a little 4 foot fence, but a 6 foot wooden fence, with an invisible fence buried along the inside so he wouldn't go to the edge. Tippy didn't care, he would run through the shock, jump the fence, and be off to roam the neighborhood.

There was the day that my fiancé caught him and tried to bring him back to the house and Tippy bit him on the arm.

There was the change in the other dogs too. Tippy bit the older dog on the ear one day. She had started nipping at him in the house and trying to keep him separated from the rest of us. We thought she was just being old and ornery, but now of course, everything looks different.

Last Thursday night, the three humans were in the music room and Tippy was with us. My fiancé and I were sitting in chairs, practicing a song for our friends' upcoming wedding. Lovely was sitting on the floor, petting Tippy. There was nothing unusual about this. He loved that little girl. He would come to her for pets each night and often would sleep next to her bed at night. Everything should have been fine.

In an instance, I see Tippy lift his head and his eyes were like nothing I had ever seen. I had time to stop singing and think to myself, "That doesn't look right." Then he was on her.

He attacked Lovely right there on the floor with us sitting there. Completely unprovoked, and with no warning growls or anything, he jumped at her face and nicked her right above the eye. In that regard, we are very lucky. She was physically not hurt much, but emotionally has had a really hard time.

Tippy had to go. Right then. I did call his rescue group before I made any final decisions, but no one wavered on what had to happen. The unpredictable and unprovoked attack on a child could not be explained or tolerated.

I took him to the vet myself. The rescue group said that they would take him back, but they would euthanize him. I wasn't going to send him away only to do what I could have done. It took me about five minutes to get the story out to the vet once I arrived. Between sobs, they understood that I had Tippy in the car and needed to have him put to sleep.

I stayed with him until the end. He was scared I think, but then again, there has been a nervousness in him that lately that goes on the list of things I didn't connect with him. I had promised him that I was his forever home, so I stayed with him for his forever. I stroked his head and told him that I loved him, and then I said goodbye.

The next couple of days I spent beating myself senseless about the whole thing. Not one person doubted my decision, except me.

Then, yesterday morning, I woke up and realized something very important.

I am an adult.

There are people and pets and things for which I have responsibility for now, and I am competent enough to make tough decisions. Tippy was my dog, and I was responsible for him, his health, his safety, and most importantly in this case, the safety of those around him. Lovely is going to be my stepdaughter. Not only was she not safe, she didn't feel safe, and there was no way I was going to let her be afraid to come in her own home. Plus, if he would bite her, a little girl that he loved, he would bite anyone. This erratic behavior doesn't exist in a healthy dog. There was something wrong with my Tippy Tail, and even though I will never know what it was, I am confidant that I made the right decision.

That doesn't mean that I don't miss him. We all miss him. I miss his cold nose in the mornings, the way he would throw his head back and give a hearty, "Roo, roo!" when it was time to go outside. I miss him laying by my feet and looking up at me with those huge brownish red eyes that perfectly matched his brownish red spots.

Tippy was a great dog who had come a long way in his life as a pet. I loved him very much, all the way to the end.


Wednesday, June 21, 2006

For the past week, Daddy has been staying with my brother and sister-in-law in Tennessee. Momma was going to the Presbyterian General Assembly in Birmingham, Alabama.

Each day she has been gone, Daddy has gone into his bedroom and packed his suitcase. He thought Momma was coming back each day. She has been gone for almost a week.

Each night, he has kept my brother and/or sister-in-law up all night, calling them every 15 to 30 minutes to come and help him get up, get down, straighten the sheets, go to the bathroom, pack his bag, get a doughnut, or just to ask if they were still there. No one has slept more than 3 hours in a row since his arrival.

Each of his declines comes with a fall further than he had been before and a fall too far to get back up to where he used to be. Last night, he called out for his dad all night long. When my brother went in to help him, Daddy called him, "Daddy."

Each time a new development occurs with Daddy, my mom tries to analyze it. She talks about medicine changes, differences in their schedule, him being in an unfamiliar environment, or how she hasn't taken good enough care of him. It is time for that to stop.

The fact of the matter is that is doesn't matter anymore why he is getting worse in leaps and bounds. What matters is what we are going to do to handle it. If it is medicine, then how quickly are we going to fix it? What are we going to do to make sure that all his different doctors are on the same page? What are we going to do to make sure that Momma gets to sleep?

What are we willing to give up? Work? Privacy? Space? Pride? Location? Friends?

There comes a time I think when it is just time to shut up and act. I obviously think this time is now for my parents.

Denied. Denied. And denied again. Never mind the fact that they are wasting time and now probably money for not just approving the scan.

It doesn't matter in the end. She is of course, getting it anyway. Next week. Then she goes back to her oncologist on June 30.

Now we continue to wait.

Friday, June 09, 2006

And the answer is no. Again, the insurance company has said no to the pet scan that my mother needs. There has been no treatment yet for the cancer we know she has. The pet scan is a "treatment planning" procedure. Blue Cross has delayed her treatment by weeks and shortened her life by who knows how long.

The doctor will resubmit the request today in hopes that it doesn't come across the desk of another complete idiot. Of course, that is assuming that someone besides complete idiots work at Blue Cross. That is a huge assumption.

Wednesday, June 07, 2006

There is a commercial that NBC is running for a new show. In it, a man asks, "In your wildest dreams, am I there?".

That, I think, is not only a valid question, but one of the most important ones I've heard in a long time.

In the midst of the craziness of my parent’s illness, I have gotten a divorce.

A divorce in my family is a crisis. I introduced another crisis into our lives when we were already in crisis. Not entirely fair, but I couldn't wait any longer. I could not take another avoidable disappointment in my life. In early 2005, I told my husband to leave (he couldn't pay the bills in our house, so in my mind, I got to stay), and I got the quickest divorce I possibly could.

And now, my family knows that I will be with someone who loves me like they think I should be loved. I am with someone who would be with me in my wildest dreams.

I love them for realizing this, and I love them even more for being happy for me in this aspect of life when there are so many reasons to just be sad.

I have an amazing family.

Tuesday, June 06, 2006

Today, my momma's doctor resubmitted the request for her pet scan. Still unable to convince Blue Cross Blue Shield that they weren't trying to diagnose ovarian cancer, only to map where it is in her body, they have a new plan.

Lucky for Momma, she is also a breast cancer victim. They will be resubmitting the request for a pet scan for a breast cancer patient. She is so lucky to be both a victim of ovarian cancer and breast cancer. Hooray.

Tuesday, May 30, 2006

My mother was so tired last night. After dealing with Blue Cross Blue Shield yesterday, she was just exhausted.

I envision her in the ocean, trying to swim to safety. Blue Cross is on a boat with a life preserver on a rope. It is her life preserver, one that she paid for herself. But they have it on a rope and keep pulling it out of her reach every time she has almost grabbed hold of it.

She is having to waste her energy fighting for something that shouldn't be negotiable. I don't understand.

It's us vs. the insurance company. We have been holding our breath, waiting for the scheduling of my mother's pet scan. It is basically a scan that shows live tissue. So basically, it is a scan that will map the exact location and size of my mother's cancer, thereby dictating the treatment.

It is NOT a diagnostic tool. We know that she has ovarian cancer.

The insurance company has denied the request for said pet scan because the scan has not been proven to diagnose ovarian cancer.

Did you catch the part where we know that she has ovarian cancer???

The question is not WHAT she has, it is how do we treat it so that she has 4 years instead of 3? Or 3 years instead of 2?

I would like very much to thank the insurance guru who quite possibly just wasted 4% of the rest of my mother's life by denying her this scan. We will now have to wait another month while they take their fingers out of their asses and realize that we aren't diagnosing ovarian cancer.

We are staring it in the face and trying our best to get the better of it.

Did I miss the part where insurance gurus went to medical school and know what exactly will help my mother? I hope every one of them has someone they love die of cancer because an insurance company took their sweet time getting things right. I hope every one of them watches someone they love be so sick that they are too tired to fight the corporations. And I hope they then regret the work they have chosen to do in their worthless lives.

Sunday, May 28, 2006

There is one person who can make me feel less like an impending-orphaned, tortured soul; the daughter of my soon-to-be new husband. I'll call her Lovely.


I met my soon-to-be new husband a little over 2 years ago. Neither one of us had a clue that we would be where we are now. That is a story for a completely different blog. The biggest surprise though, has been Lovely.

Today she took me swimming. We donned our suits and after I got done being completely shocked at how strange I looked in a swimsuit after gaining 10 pounds since I last wore it, we hit the pool. For 2 hours, I was not a daughter, but a soon-to-be stepmother. I was a friend to a little girl who needs that more than anything these days. We splashed and played, jumped off the diving board, and then I retired to rest like a grown up while she continued on being a kid. For 2 hours, I was not the scared child of my parents, but the guardian of a child I find myself loving more and more everyday.

Lovely knows my parents are not well. She has caught me in her room with her Cavi, holding him and whispering my secrets in his little potato chip ears. My nose is red, my eyes are red, my makeup is streaked and she says nothing. She sits beside me on her bed and rubs my hair.

I think the Cavi knows her secrets too.

See, Lovely and I have something in common. Her parents divorce has been unfair to her. It has been bitter and cruel, and her mother has taken no steps to shield her from the adults' thoughts and feelings. From what I understand, their marriage was no less unfair to her. Lovely played the peace keeper and wound healer during and after her parents' fights. And neither of these roles did she sign on for in life.

My parents' illnesses have been unfair to me as well. As selfish as it may seem to talk about me when my parents are both terminal, may I remind everyone that I am not writing to show the best of me, and in fact, most of the time I feel as though I'm writing to release my demons. Point being, Lovely and I have both had to grow up much faster than we ought to, and we had both been forced to see our parents as true human beings with flaws, anger, sickness, pain, sadness, fear, and brokenness.

So in the pool with Lovely, I can forget. As the rest of the families go on around us, I find comfort in this child and hope that she finds comfort in me too. Maybe she will get to know my mother and love her like a grandchild. They both would be so lucky.

Friday, May 26, 2006

Daddy asked me to gather information on assisted living homes near me.


My ex-husband works at a nursing home. I hear Jesse Helms is now a patient there. It is expensive. I hear that it is also dirty. You hear all sorts of things. I have an older friend who keeps her mother in a town 90 miles away and drives there almost everyday because she swears that it is that much better than the homes in her town.

That, however, is talk of nursing homes. I'm supposed to think about assisted living. Neither one impress me much.

How about this for assisted living? You come and move in with me. Me and my soon-to-be new husband will build you an apartment behind the house. You become our dependents, thereby allowing his incredible insurance to cover you. You get most of your drugs for free because the pharmaceutical company that my soon-to-be new husband works for makes those drugs. I take care of you.

I assist you in living.

In return, you share the rest of your life with me. And I share my new life with you. You allow me to give back a small fraction of what you have given me.

He will say no. He will tell me that he doesn't want to be a burden. What he doesn't understand is that the pain is the burden. Missing him and Momma, knowing that I don't have them for much longer and they are so very far away - that is the burden.

My joy would be to assist in their living and have them here with me. Not a burden.

Tuesday, May 23, 2006

My mother is a preacher. A Presbyterian minister to be precise. She has a way with words that Billy Graham would envy, that is if it weren't one of those 10 commandments not to. Her delivery is honest and inviting, and she weaves in her own stories in spite of being "called to teach the scripture."


It is her own stories that draw us in though. The fact that she only recognizes her own strength in hindsight and plays it down as "doing what she had to do" is one of her most endearing qualities.

In 1980, the day after Christmas, she went into the hospital for a radical mastectomy. My brother and I were deposited at different homes each day to play with other children and be looked after by all the moms who were so glad it wasn't them in that hospital.

I remember sugar cereal. The first mom we stayed with was Momma's best friend. I got to have Cookie Crisp for breakfast. This friend was a doctor (which I later pointed out to Momma since we couldn't have sugar cereal for breakfast), and she wanted to know if we had questions. I was 7 and the only question I had was,

"Can I have seconds?"

Later, I would learn the gravity of the situation. The odds were laid out to my parents at 70/30 and not in her favor.

"Get your family in order."
"Do you have a will?"
"Make plans for your children."

She made it through without batting an eye. Looking back, she finally blinked and realized how close she came to tragedy. She shrugged, said a prayer of thanks, turned back around, and kept right on living.

My grandfather was my best friend. He would be the one I could call and spill all of my bad days. He would listen, softly chuckling when I got too melodramatic. Those calls were so cleansing for me. The crisis would immediately begin to fade when he would say,


"Good thing you get to start (again)." paraphrased.

It's hard to imagine myself without parents. They have been everything to appreciate. I thought my daughter would have the same kind of relationship with my father that I had with his. My father could be the same kind of grandfather that his father was. He has the wisdom and the kindness. He would so love to have a granddaughter who called him her best friend.

There are so many things that I want to give to my parents that only time would allow. Starting all over tomorrow won't give me that time though. It will only mean that another day has past, and we are another day closer to the cruel illnesses that will take my parents.

Right now I'm not looking forward to tomorrow anymore.me. Now that I'm finally somewhat of an adult and can actually spend time with them as friends, they have become suddenly old. It doesn't make any sense.

My grandfather's wisdom needed that generation gap to be true.

For some reason, I cannot figure out how I am supposed to answer the question, "How are your parents?" It is a polite question, and one that I am frequently asked due to my propensity to take off across the county at any given moment. Everyone knows that I go to see my parents as often as I can.

Now though, I cannot honestly say, "Fine, thank you."

I have tried a couple of different answers which have had varying degrees of success. Today, I simply tried, "They can't treat my mother's cancer and have given her three to four years to live if the chemo works."

That is one that I discovered I can't get through gracefully yet. I experimented today with a trusted friend who asked the question and found me in a sobbing mess less than five words into the answer. Lucky for me, she has been the first person who hasn't said,

"I don't know what to say."

Those are hard words to hear. Even from best friends, they are hard, because they remind me that I don't know what to say either.

What I haven't said here yet is how much everyone loves my momma. It isn't just that it is hard for me to tell people that I'm going to lose her entirely too soon, it is that I'm also telling them they are going to lose her.

I guess that means that I won't be alone in my grief though.

Friday, May 19, 2006

Three to four years. Today, the rest of my mother's life was capsulated into three to four years. If I start now, my child might be able to say her name before she dies.


My brother is still there with them now. He called me with the news. We seem to take turns delivering the bad news to each other. Each broadcast is carefully scripted and the reporter stiffens to give a steady delivery and let the audience take the blow.

Surgery is unlikely. The cancer is throughout her abdomen and taking it out surgically would be difficult, dangerous, and a demanding recovering would follow. This would all take place while she is still my father's primary care giver.

Chemotherapy only offers temporary containment. This is where she will eek out her three to four years. Round three of chemo for Momma would be less vicious. They aren't trying to kill anything anymore, just stave it off. She could take one drug at a time and still continue to take care of Daddy. Which, by the way, is why she is considering this at all. She wants to take care of him as long as she possibly can.

My father's Parkinson's will shorten his life and indirectly lengthen my mother's.

Tonight, my mother and I sit on opposite coasts of the country. We are each drinking Scotch. We are each afraid to talk to the other. We are each wishing the same things on the same stars. She is praying. I have been missing her for the past 8 years that we have lived apart. Now, I feel like I'm practicing missing her for forever.

Thursday, May 18, 2006

My grandparents are dead, which is not so sad since they were incredibly old when they died. Don't get me wrong, I still miss them. Grandmomma died at 86 in 1996 following a battle with Alzheimer’s. Honey (my other grandmother) died at 97 in 2003, and Granddaddy died at 93 later that year as well. They both died of plain old age. All three were a huge part of our lives, and I assumed that my children would feel the same way about my parents.


As I see it, we had moved into the phase where my parents were now going to be the grandparents and we would have another 30 years of travel, pictures, cards, phone calls, and everything I had with my grandparents. One problem, I don't even have any kids yet.

There are only granddogs from me. The best granddogs that ever lived, mind you, but still canine. The most recent one was even named after my grandfather, father, and brother (Senior, Junior, and the Third), since I had decided that I was doomed to be barren. Lucky for me, I was just doomed to be divorced and now have hope to be a mom with the most perfect man.


So she also says, "I want to live to see my next grandchildren."

I want that more than anything. That should have been on my list. I want my mother to live not just to see her next grandchildren, but to baptize them and watch them grow up even just a few years. I want them to know her and have memories of her.

This is not too much to ask.

Wednesday, May 17, 2006

She asked me what I wanted from their house yesterday. Of course I could think of things. The Jackson press. The green and white china. Those crazy pewter mugs that no one in their right mind would buy, but they are so cool. The tea cart that belonged to my grandmother. The watercolor of the pigs in the upstairs hallway. The piano. Her Bible.


I said, "Just you, Momma."

After careful consideration though, I have come up with the real list of things I want from my mom. Here it is:

1. The comfortable way she handles people in distress.
2. Her ability to not just speak in front of crowds, but to captivate them.
3. The gorgeous white her hair turned.
4. Her confidence.
5. The way she can let someone she loves know that she is angry while never letting them doubt that she still loves them.
6. Her faith.
7. Her knack at making pie crust from scratch.
8. Just a fraction of her wisdom.
9. Her amazing speed at completing tasks.

and number 10: I want the 30 years we will more than likely be gipped because of cancer.